Research

Patients Engagement in Research

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Publications

  • Pons-Tomas, Gemma, Hernandez-Garcia, Maria, Mele-Casas, Maria, Fernández de Sevilla-Estrach M, Launes-Montana C, Girona M, Rios-Barnés M, Bassat Q, Ajanovic, Sara, Cubells M, Claverol J, Penela-Sanchez, Daniel, Jou-Munoz C, Manuel Monsonis Cabedo, Esteva-Afonso C, Fassanella, Assumpta, Cuadras-Palleja D, Munoz-Almagro C, Jordán-García I, Fortuny-Guasch C, García-García JJ and Fumadó V.

    Clinical Characterization, Transmissibility, and Seroconversion of SARS-CoV-2 Infection in Children (before the Start of Vaccination) in the Barcelona Metropolitan Region (Spain)

    Journal of Pediatric Infectious Diseases . 19(05): 251-259.

    [doi:10.1055/s-0044-1787676]

  • Cortese S, Purper-Ouakil D, Apter A, Arango C, Baeza I, Banaschewski T, Buitelaar J, Castro-Fornieles J, Coghill D, Cohen D, Correll CU, Grünblatt E, Hoekstra PJ, James A, Jeppesen P, Nagy P, Pagsberg AK, Parellada M, Persico AM, Roessner V, Santosh P, Simonoff E, Stevanovic D, Stringaris A, Vitiello B, Walitza S, Weizman A, Wong ICK, Zalsman G, Zuddas A, Carucci S, Butlen-Ducuing F, Tome M, Bea M, Getin C, Hovén N, Konradsson-Geuken A, Lamirell D, Olisa N, Nafria-Escalera B and Moreno C.

    Psychopharmacology in children and adolescents: unmet needs and opportunities.

    The lancet. Psychiatry . 11(2): 143-154.

    [doi:10.1016/S2215-0366(23)00345-0]

  • Reidemeister S, Nafria-Escalera B, Marín D, Balayla J, Klingmann I and Klingmann V.

    Young patients' involvement in a composite endpoint method development on acceptability for paediatric oral dosage forms.

    Research Involvement and Engagement . 9(1): 108-108.

    [doi:10.1186/s40900-023-00520-8]

  • Bray L, Carter B, Kiernan J, Horowicz E, Dixon K, Ridley J, Robinson C, Simmons A, Craske J, Sinha S, Morton L, Nafria-Escalera B, Forsner M, Rullander AC, Nilsson S, Darcy L, Karlsson K, Hubbuck C, Brenner M, Spencer-Little S, Evans K, Rowland A, Hilliard C, Preston J, Leroy PL, Roland D, Booth L, Davies J, Saron H, Mansson ME, Cox A, Ford K, Campbell S, Blamires J, Dickinson A, Neufeld M, Peck B, de Avila M, Feeg V, Mediani HS, Atout M, Majamanda MD, North N, Chambers C and Robichaud F.

    Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus

    EUROPEAN JOURNAL OF PEDIATRICS . 182(10): 4707-4721. Number of citations: 4

    [doi:10.1007/s00431-023-05131-9]

  • Dhaenens, BAE, Mahler, F, Batchelor, H, Dicks, P, Gaillard, S, Nafria-Escalera B, Kopp-Schneider, A, Ribeiro, MA, Schwab, M, Sparber-Sauer, M, Leubner, J, de Wildt, SN and Oostenbrink, R.

    Optimizing expert and patient input in pediatric trial design: Lessons learned and recommendations from a collaboration between conect4children and European Patient-CEntric ClinicAl TRial PLatforms

    CTS-CLINICAL AND TRANSLATIONAL SCIENCE . 16(8): 1458-1468. Number of citations: 1

    [doi:10.1111/cts.13547]

  • Baird AM, Westphalen CB, Blum S, Nafria-Escalera B, Knott T, Sargeant I, Harnik H, Brooke N, Wicki N and Wong-Rieger D.

    How can we deliver on the promise of precision medicine in oncology and beyond? A practical roadmap for action

    health science reports . 6(6): . Number of citations: 4

    [doi:10.1002/hsr2.1349]

  • Hernández-García M, Bassat Q, Fumadó V, Rodas G, Pi R, Miranda-García M, Girona M, Català M, Alonso S, Alvarez-Lacalle E, López D, Melé-Casas M, Pons-Tomas G, Fernández de Sevilla-Estrach M, Bonet E, Fortuny-Guasch C, García-Miquel A, Jou-Munoz C, Adroher C, Claverol J, Cubells M, Codina-Bergadà A, Cuadras-Palleja D, Gratacós E, Brotons-de los Reyes P, Munoz-Almagro C, Prats C, García-García JJ and Jordán-García I.

    SARS-CoV-2 transmission in teenagers and young adults in Futbol Club Barcelona's Multidisciplinary Sports Training Academy

    EUROPEAN JOURNAL OF PEDIATRICS . 182(5): 2421-2432. Number of citations: 1

    [doi:10.1007/s00431-023-04880-x]

  • Faulkner SD, Somers F, Boudes M, Nafria-Escalera B and Robinson P.

    Using Patient Perspectives to Inform Better Clinical Trial Design and Conduct: Current Trends and Future Directions

    Pharmaceutical Medicine . 37(2): 129-138. Number of citations: 10

    [doi:10.1007/s40290-022-00458-4]

  • Cheng, Katharine, Mahler, Fenna, Lutsar, Irja, Nafria-Escalera B, Breitenstein, Stefanie, Vassal, Gilles, Claverol J, Noel Palacio, Nuria, Portman, Ron, Pope, Gavin, Bakker, Martijn, van der Geest, Tessa, Turner, Mark A and de Wildt, Saskia N.

    Clinical, methodology, and patient/carer expert advice in pediatric drug development by conect4children.

    CTS-CLINICAL AND TRANSLATIONAL SCIENCE . 16(3): 478-488. Number of citations: 3

    [doi:10.1111/cts.13459]

  • Mele-Casas M, Launes-Montana C, Fernández de Sevilla-Estrach M, Hernandez-Garcia M, Pons-Tomas G, Bassat Q, Fumadó V, Fortuny-Guasch C, Garcia-Miquel A, Bonet E, Prats C, Ajanovic S, Cubells M, Claverol J, Penela-Sanchez D, Jou-Munoz C, Arias S, Balanza N, Baro B, Millat-Martinez P, Alonso S, Alvarez-Lacalle E, Catala M, Cuadras-Palleja D, Munoz-Almagro C, Gratacós E, Jordán-García I and García-García JJ.

    Low transmission of SARS-CoV-2 derived from children in family clusters: An observational study of family households in the Barcelona Metropolitan Area, Spain

    PLoS One . 17(11): . Number of citations: 3

    [doi:10.1371/journal.pone.0277754]