Begoña Nafria Escalera
Jefe de Grupo
Research group
Begonya Nafria has long experience in the field of patient and family participation in research initiatives. Her personal history as a caregiver for an adult with cerebral palsy has linked her to various projects and initiatives in the field of defending patients' rights.
Her areas of expertise focus on the participation of paediatric patients in research and specifically in the field of clinical trials.
Relevant aspects of hes curriculum are: CIBERER collaborator, EUPATI member, eYPAGnet Coordinator, Kids Barcelona Coordinator (YPAG of Hospital Sant Joan de Déu), member of the EFGCP Children's Medicines working group and member of the working group of patients and families of EnprEMA (European Network for Pediatric Research of EMA).
She is also a reviewer for various journals specialized in the subject of patient participation in research and rare diseases, and a teacher in seminars, courses and conferences.
Last Publications
- Quintillá-Martínez JM, de la Gala C, Berrueco R, Claverol J, Figueres B, Bergós A, Rodríguez L, Mora A, DiBiaso V, Llanos C and Nafria-Escalera B High-Fidelity Clinical Simulation to Improve a Pediatric Clinical Trial Design: Lessons Learned and Conceptualization of the Return on Investment (ROI) and Return on Engagement (ROE) Analysis PEDIATRIC DRUGS . 27(1): 73-84.
- Cortese S, Purper-Ouakil D, Apter A, Arango C, Baeza I, Banaschewski T, Buitelaar J, Castro-Fornieles J, Coghill D, Cohen D, Correll CU, Grünblatt E, Hoekstra PJ, James A, Jeppesen P, Nagy P, Pagsberg AK, Parellada M, Persico AM, Roessner V, Santosh P, Simonoff E, Stevanovic D, Stringaris A, Vitiello B, Walitza S, Weizman A, Wong ICK, Zalsman G, Zuddas A, Carucci S, Butlen-Ducuing F, Tome M, Bea M, Getin C, Hovén N, Konradsson-Geuken A, Lamirell D, Olisa N, Nafria-Escalera B and Moreno C Psychopharmacology in children and adolescents: unmet needs and opportunities. The lancet. Psychiatry . 11(2): 143-154.
- Reidemeister S, Nafria-Escalera B, Marín D, Balayla J, Klingmann I and Klingmann V Young patients' involvement in a composite endpoint method development on acceptability for paediatric oral dosage forms. Research Involvement and Engagement . 9(1): 108-108.
Projects
- Project name:
- READI_Research in Europe and Diversity Inclusion
- Leader
- Begoña Nafria Escalera
- Funding entities:
- European Commission
- Code
- 101166227
- Starting - finishing date:
- 2025 - 2030
- Project name:
- Juga i aprèn sobre recerca biomèdica al vestíbul de Sant Joan de Déu
- Leader
- Begoña Nafria Escalera
- Funding entities:
- Fundació Institució Catalana per a la Recerca i la Innovació
- Code
- 1295
- Starting - finishing date:
- 2025 - 2025
- Project name:
- Project-COMFORT_Patient-Centric blOod saMpling FOr impRoved healThcare
- Leader
- Begoña Nafria Escalera, Joana Claverol Torres
- Funding entities:
- European Commission
- Code
- 101163781
- Starting - finishing date:
- 2024 - 2028
News
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Adolescent mental health at the center of the Science4Pandemics closing event
The Patient Participation in Research Area of the Sant Joan de Déu Research Institute organized a hybrid event on January 15 with the aim of raising awareness about mental disorders in adolescents and promoting tools to care for mental health during this critical stage.
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Nanomedicine to tackle rare diseases
Experts in nanomedicine from various fields have gathered today for the fifth consecutive year at Nano Rare Diseases Day. This event is co-organized by IRSJD and the NANOMED Spain platform, coordinated by IBEC.