Begoña Nafria Escalera
Jefe de Grupo
Research group
Begonya Nafria has long experience in the field of patient and family participation in research initiatives. Her personal history as a caregiver for an adult with cerebral palsy has linked her to various projects and initiatives in the field of defending patients' rights.
Her areas of expertise focus on the participation of paediatric patients in research and specifically in the field of clinical trials.
Relevant aspects of hes curriculum are: CIBERER collaborator, EUPATI member, eYPAGnet Coordinator, Kids Barcelona Coordinator (YPAG of Hospital Sant Joan de Déu), member of the EFGCP Children's Medicines working group and member of the working group of patients and families of EnprEMA (European Network for Pediatric Research of EMA).
She is also a reviewer for various journals specialized in the subject of patient participation in research and rare diseases, and a teacher in seminars, courses and conferences.
Last Publications
- Cortese S, Purper-Ouakil D, Apter A, Arango C, Baeza I, Banaschewski T, Buitelaar J, Castro-Fornieles J, Coghill D, Cohen D, Correll CU, Grünblatt E, Hoekstra PJ, James A, Jeppesen P, Nagy P, Pagsberg AK, Parellada M, Persico AM, Roessner V, Santosh P, Simonoff E, Stevanovic D, Stringaris A, Vitiello B, Walitza S, Weizman A, Wong ICK, Zalsman G, Zuddas A, Carucci S, Butlen-Ducuing F, Tome M, Bea M, Getin C, Hovén N, Konradsson-Geuken A, Lamirell D, Olisa N, Nafria-Escalera B and Moreno C Psychopharmacology in children and adolescents: unmet needs and opportunities. The lancet. Psychiatry . 11(2): 143-154.
- Reidemeister S, Nafria-Escalera B, Marín D, Balayla J, Klingmann I and Klingmann V Young patients' involvement in a composite endpoint method development on acceptability for paediatric oral dosage forms. Research Involvement and Engagement . 9(1): 108-108.
- Bray L, Carter B, Kiernan J, Horowicz E, Dixon K, Ridley J, Robinson C, Simmons A, Craske J, Sinha S, Morton L, Nafria-Escalera B, Forsner M, Rullander AC, Nilsson S, Darcy L, Karlsson K, Hubbuck C, Brenner M, Spencer-Little S, Evans K, Rowland A, Hilliard C, Preston J, Leroy PL, Roland D, Booth L, Davies J, Saron H, Mansson ME, Cox A, Ford K, Campbell S, Blamires J, Dickinson A, Neufeld M, Peck B, de Avila M, Feeg V, Mediani HS, Atout M, Majamanda MD, North N, Chambers C and Robichaud F Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build consensus EUROPEAN JOURNAL OF PEDIATRICS . 182(10): 4707-4721.
Projects
- Project name:
- Althea_tAckLing menTal Health cancer patients and their families: digital solutions for bEtter cAre
- Leader
- Marta Pérez Campdepadrós
- Funding entities:
- European Commission
- Code
- 101161236
- Starting - finishing date:
- 2024 - 2027
- Project name:
- Evaluación de un nuevo test diagnóstico rápido para la cuantificación de biomarcadores pronósticos en el triaje del paciente crítico y la mejora de la superviviencia neonatal e infantil (ACROBAT-Critical)
- Leader
- Ana Alarcon Allen
- Funding entities:
- Instituto de Salud Carlos III (ISCIII)
- Code
- PI23/00103
- Starting - finishing date:
- 2024 - 2026
- Project name:
- PALLIAKID_COMPREHANSIVE PAEDIATRIC PALLIATIVE CARE APPROACH
- Leader
- Sergi Navarro Vilarrubi, Sílvia Ricart Campos
- Funding entities:
- European Commission
- Code
- 101137169
- Starting - finishing date:
- 2023 - 2028
News
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Nanomedicine to tackle rare diseases
Experts in nanomedicine from various fields have gathered today for the fifth consecutive year at Nano Rare Diseases Day. This event is co-organized by IRSJD and the NANOMED Spain platform, coordinated by IBEC.
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The Pediatric Innovation Day 2023 is celebrated in Warsaw
The third edition of Pediatric Innovation Day (PID) marked a milestone by being held outside Barcelona for the first time, moving to Warsaw. This event solidified itself as a space for collaboration and shared knowledge, emphasizing the importance of international cooperation, active patient participation, and a precise understanding of specific needs in the pediatric healthcare field.
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The IRSJD joins the XarSMART network to promote the transfer of medical technology in Catalonia.
The Institut de Recerca Sant Joan de Déu (IRSJD) participates in XarSMART, a project that aims to promote the generation of medical technologies and new companies in Catalonia in the field of life sciences and health.